Arthritis Care – a user led charity that provides high quality information and support for those with all types of arthritis.
Arthritis Research (UK) – the UK’s leading arthritis funding research charity.
NRAS – the National Rheumatoid Arthritis Society (NRAS) provides support and information for people with Rheumatoid Arthritis and Juvenile Idiopathic Arthritis.
NASS – the National Ankylosing Spondylitis Society (NASS) provide support, advice and information to people with Ankylosing Spondylitis.
Rheumatology Network – News summaries based on studies published in leading medical journals and specialty medical journals, conference coverage and more.
NIHR CCF PPIE annual reports – Update on patient and public involvement and engagement in NIHR organisations, including Biomedical Research Units and centres.
Clinical Research Network : Patients, carers and the public – a section of the NIHR web site promoting the participation of patients, carers, family members and the general public in understanding and taking part in medical research.
Involve – a national advisory group which supports public involvement in NHS, public and social care research.RDS-Jargon-Buster.pdf (17 downloads)
Useful for people reviewing information for patients:
Health Research Authority – guidance on Patient Information Sheets.
The BRC quarterly PPI newsletter